That's when Talon Michael was born. Within 24 hours Talon was transferred to the NICU due to seizures. Soon after, he was transferred to Children’s Hospital in Boston (CHB) where he was diagnosed with Bilateral Perisylvian Polymicrogyria - a neurological brain disorder and Peroxisomal Disorder - a rare genetic disease. Not only were they rare but also terminal. We were told Talon had a life expectancy of about two years.
Although the next twenty-one months were filled with highs and lows, we were determined to make the most of what little time we had with Talon. We did so by creating and capturing many special memories with him.
Talon earned his angel wings on May 14, 2013 three months shy of his 2nd birthday.
The outpouring of support we received throughout and after Talon’s life was like no other. We realized just how fortunate we were to have so much support and wanted to give back as well as honor our baby boy. Talon’s Christmas Wish was created to assist us in doing just that!